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Published: January 15, 2025

What to Expect at Your Child’s First Visit to a Pediatric Neurosurgeon

When your child is referred to a pediatric neurosurgeon specalist, it’s natural to feel worried or unsure about what’s ahead. This guide will help you understand what happens during the first appointment, how to prepare, and what questions to ask to make the experience as smooth as possible for you and your child.

Why Might Your Child Be Referred to a Pediatric Neurosurgeon?

Pediatric neurosurgeons are specialists who diagnose and treat conditions affecting the brain, spine, and nervous system in children. Your child may be referred for many reasons, such as:

  • Congenital Conditions: Like spina bifida or craniosynostosis (skull shape abnormalities).
  • Hydrocephalus: A buildup of fluid in the brain that needs to be addressed.
  • Head Trauma: From accidents, sports injuries, or falls.
  • Brain or Spinal Tumors: Growths in the central nervous system.
  • Developmental Delays: When neurological concerns are suspected.
  • Seizures or Epilepsy: Conditions that require specialized care.

Keep in mind that a referral doesn’t always mean something serious. Often, it’s a precautionary step to ensure your child’s health is thoroughly evaluated.

How to Prepare for Your Child’s First Pediatric Neurosurgeon Appointment

Preparation can help ease your concerns and make the visit more productive. Here’s how to get ready:

  1. Gather Medical Records: Bring test results, imaging (MRI or CT scans), and referral notes from other doctors.
  2. Document Symptoms: Write down your child’s symptoms, when they started, and any changes you’ve noticed.
  3. List Medications: Include dosages and schedules for any medicines your child is taking.
  4. Prepare Questions: Create a list of things you want to ask the neurosurgeon (examples below).
  5. Explain to Your Child: Use simple terms to explain why they’re seeing the doctor and reassure them.
  6. Pack Comfort Items: Bring toys, books, or snacks to keep your child calm during the visit.

What Happens During the Appointment?

Here’s what you can typically expect:

1. Medical History Review

The neurosurgeon will ask detailed questions about your child’s symptoms, medical history, and family history of neurological conditions.

2. Physical Examination

The doctor will perform a neurological exam to evaluate:

  • Motor skills, coordination, and reflexes.
  • Muscle strength and tone.
  • The head, spine, and nervous system for any abnormalities.

3. Diagnostic Tests

If needed, the neurosurgeon may recommend additional tests to better understand your child’s condition. These may include:

  • MRI or CT Scans: To get detailed images of the brain or spine.
  • EEG (Electroencephalogram): To check brain activity, often for seizures.
  • Blood Tests: To rule out infections or other abnormalities.

These tests may not always be done on the first visit but could be scheduled later.

Questions to Ask the Pediatric Neurosurgeon

To ensure you’re well-informed, consider asking:

  • What is the likely cause of my child’s symptoms?
  • Are additional tests needed to confirm the diagnosis?
  • What are the possible treatment options?
  • Will my child need surgery?
  • What are the next steps after this visit?
  • How can I support my child’s condition at home?

Don’t hesitate to bring up any concerns. The neurosurgeon is there to guide you.

 

How to Support Your Child Through the Process

It’s common for both parents and children to feel anxious. Here are some tips to help:

  • Stay Positive: Your calm demeanor will reassure your child.
  • Explain Clearly: Let your child know the doctor is there to help them feel better.
  • Ask for Help: If your child is nervous, let the neurosurgeon know—they’re experienced in working with kids.

When to Call the Doctor

Contact the neurosurgeon if:

  • Your child’s symptoms worsen or don’t improve.
  • You notice new symptoms.
  • Medication causes side effects.

Seek emergency care if your child has sudden severe symptoms, such as difficulty breathing, prolonged seizures, or a significant change in consciousness.

Conclusion: Expert Care for Your Child’s Neurological Health

Meeting with a pediatric neurosurgeon is an important step in understanding and managing your child’s neurological health. By preparing ahead, asking the right questions, and working closely with the specialist, you can make this process less overwhelming for both you and your child.

At the New Jersey Pediatric Neuroscience Institute (NJPNI), our compassionate team of pediatric neurosurgeons is here to support you every step of the way. Contact us today to schedule your consultation and take the first step toward ensuring your child’s health is in expert hands.

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NOTICE: This website is for informational purposes only and is not intended as medical advice or as a substitute for a patient/physician relationship.

NJPNI is committed to creating a culturally diverse, inclusive and collaborative community for patients and their families, employees and associates where each person is celebrated and has a sense of equal belonging. See our DEI Statement Page for more information.

NJPNI does not exclude, deny benefits to, or otherwise discriminate against any person on the grounds of race, color, or national origin, or on the basis of disability or age in admission to, participation in, or receipt of the services and benefits of any of its programs and activities or in employment therein. This statement is in accordance with the provisions of Title VI of the Civil Rights Act of 1964, Section 504 of the Rehabilitation Act of 1973, the Age Discrimination Act of 1975, and Regulations of the U.S. Department of Health and Human Services issued pursuant to the Acts, Title 45 Code of Federal Regulations part 80, 84, and 91.

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