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Published: October 26, 2023

How to Reduce Risks and Support Children With Hydrocephalus

Pediatric hydrocephalus is a challenging condition for children and their families. It happens when too much fluid builds up in a child’s brain, creating pressure that can lead to serious health issues. While many children with hydrocephalus go on to lead fulfilling lives, the condition can be life-threatening if not diagnosed or treated in time.

This guide explains why morbidity rates in pediatric hydrocephalus are high, what the risk factors are, and how expert care can help. We’ll also highlight the New Jersey Pediatric Neuroscience Institute (NJPNI) and its role in supporting families.

What Is Pediatric Hydrocephalus?

Hydrocephalus is a condition where cerebrospinal fluid (CSF) builds up in the brain, causing swelling and increased pressure. In children, it can happen due to birth defects, infections, or even brain tumors.

If hydrocephalus is left untreated, it can lead to severe complications, including developmental delays, seizures, and even death. However, with proper treatment and care, many children live healthy, happy lives.

Why Are Morbidity Rates High in Pediatric Hydrocephalus?

Several factors contribute to the higher risk of morbidity and mortality in children with hydrocephalus:

Delayed Diagnosis:
Symptoms like an enlarged head or irritability in infants might be missed, delaying critical treatment.

Infections:
Infections such as meningitis can make hydrocephalus worse, increasing the chances of complications.

Shunt Problems:
A common treatment for hydrocephalus is a shunt, which helps drain excess fluid from the brain. However, shunts can malfunction or get infected, which can be life-threatening if not addressed quickly.

Other Health Issues:
Children with hydrocephalus often have other medical problems, which can complicate their care and increase risks.

What Are the Risk Factors for Hydrocephalus in Children?

Understanding what puts a child at risk for hydrocephalus can help parents act early:

Congenital Causes: Some babies are born with hydrocephalus due to genetic factors or issues during pregnancy.

Infections: Illnesses like meningitis during pregnancy or early infancy can lead to hydrocephalus.

Premature Birth: Premature babies are at higher risk due to brain bleeding (intraventricular hemorrhage).

Brain Tumors or Injuries: Any blockage in the brain caused by tumors or trauma can lead to fluid buildup.

Can a Child With Hydrocephalus Live a Normal Life?

Yes, with early treatment and ongoing care, many children with hydrocephalus grow up to live fulfilling lives.

Treatment Options:

A shunt or a procedure like endoscopic third ventriculostomy (ETV) can help manage fluid buildup.

Regular checkups ensure the treatment is working and prevent complications.

Long-Term Support:

Rehabilitation therapies can help with developmental delays.

Emotional and educational support ensures children thrive at school and home.

The key is catching the condition early and working closely with a pediatric neurosurgeon.

How Can Parents Support a Child With Hydrocephalus?

Supporting a child with hydrocephalus involves more than just medical care—it’s about emotional and practical guidance. The New Jersey Pediatric Neuroscience Institute (NJPNI) provides:

Expert Medical Care: Their team of pediatric neurosurgeons specializes in managing hydrocephalus with state-of-the-art treatments.

Family Support: They offer resources to help parents understand the condition and make informed decisions.

Guidance for Daily Life: NJPNI helps families build care plans that ensure children stay healthy and happy.

Parents can also:

Watch for signs of shunt malfunction, like headaches or nausea.

Attend all follow-up appointments.

Work with schools to accommodate their child’s needs.

Conclusion: Hope for Children With Hydrocephalus

While pediatric hydrocephalus is a serious condition, timely diagnosis and expert care can make a world of difference. Parents play a vital role in spotting symptoms early and seeking the right treatment.

The New Jersey Pediatric Neuroscience Institute offers families the specialized care and support they need to navigate this journey. By working together, we can reduce mortality rates and give children with hydrocephalus the chance to live fulfilling lives.

If you suspect your child has hydrocephalus or need guidance, don’t wait—reach out to NJPNI today for compassionate, expert care.

Medically Reviewed By:

Dr. John Collins

MD, DDS, Board-certified Oral and Maxillofacial Surgeon

Reviewed on: October 27, 2023

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NOTICE: This website is for informational purposes only and is not intended as medical advice or as a substitute for a patient/physician relationship.

NJPNI is committed to creating a culturally diverse, inclusive and collaborative community for patients and their families, employees and associates where each person is celebrated and has a sense of equal belonging. See our DEI Statement Page for more information.

NJPNI does not exclude, deny benefits to, or otherwise discriminate against any person on the grounds of race, color, or national origin, or on the basis of disability or age in admission to, participation in, or receipt of the services and benefits of any of its programs and activities or in employment therein. This statement is in accordance with the provisions of Title VI of the Civil Rights Act of 1964, Section 504 of the Rehabilitation Act of 1973, the Age Discrimination Act of 1975, and Regulations of the U.S. Department of Health and Human Services issued pursuant to the Acts, Title 45 Code of Federal Regulations part 80, 84, and 91.

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