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Published: December 27, 2023

Leading the Way in Pediatric Dystonia Care for Children with Movement Disorders

Navigating the world of pediatric movement disorders can be challenging for families and caregivers. One such disorder, pediatric dystonia, presents unique challenges due to its impact on a child's movement and quality of life. In this post, we'll explore what pediatric dystonia is, how it's treated, the beneficial exercises for children with this condition, and spotlight the New Jersey Pediatric Neuroscience Institute as a leading center for dystonia treatment.

What is Pediatric Dystonia?

Pediatric dystonia is a movement disorder characterized by involuntary muscle contractions, causing repetitive movements or abnormal postures. These movements can range from mild to severely disabling, affecting not just physical capabilities but also impacting emotional and social development. Dystonia in children can be an isolated condition or part of a broader syndrome, and its causes are varied, including genetic mutations, brain injury, or unknown factors.

How Do You Treat Dystonia in Children?

Treatment for pediatric dystonia is multifaceted. It often involves a combination of medications, physical therapy, and in some cases, surgical interventions. Each child's treatment plan is as unique as their symptoms, tailored to their specific needs and circumstances. Approaches may include:

  • Medications: These can help manage symptoms, but their effectiveness varies.
  • Botulinum toxin injections: Used to relieve muscle spasms in specific areas.
  • Deep Brain Stimulation (DBS): For severe cases, DBS can be effective, especially in children with genetic forms of dystonia.
  • Physical therapy: Essential for maintaining and improving motor skills and functional abilities.

Each child's treatment plan is unique and may involve a combination of these therapies.

Read more with us: Managing Pediatric Movement Disorders: Medications and Deep Brain Stimulation

What Exercises Are Good for Pediatric Dystonia?

Exercise plays a crucial role in managing pediatric dystonia. It helps in maintaining flexibility, strength, and coordination and can significantly improve motor skills and reduce discomfort. These exercises should be guided by a professional to ensure they are safe and effective.

Some beneficial exercises include:

  • Stretching: To improve muscle flexibility and reduce stiffness.
  • Strength training: Focused on core muscles to improve posture and balance.
  • Aerobic exercises: Such as swimming or cycling, which are easier on the joints and can improve overall fitness.

It's important to work with a physical therapist to design an exercise program that's safe and effective for each child's specific needs.

The Best Treatment Center for Dystonia

The New Jersey Pediatric Neuroscience Institute stands out as a premier center for the treatment of pediatric movement disorders, including dystonia. At NJPNI, a multidisciplinary team of experts, including neurologists, surgeons, therapists, and nurses, work collaboratively to provide comprehensive care. They offer cutting-edge treatments like DBS and are involved in ongoing research to advance the understanding and treatment of pediatric dystonia.

Conclusion

Pediatric dystonia is a complex condition, but with the right treatment and support, children affected by it can lead fulfilling lives. The key is early diagnosis, a comprehensive treatment plan, and ongoing support. Centers like the New Jersey Pediatric Neuroscience Institute are at the forefront of providing such specialized care, giving hope and assistance to families navigating this challenging condition.

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NOTICE: This website is for informational purposes only and is not intended as medical advice or as a substitute for a patient/physician relationship.

NJPNI is committed to creating a culturally diverse, inclusive and collaborative community for patients and their families, employees and associates where each person is celebrated and has a sense of equal belonging. See our DEI Statement Page for more information.

NJPNI does not exclude, deny benefits to, or otherwise discriminate against any person on the grounds of race, color, or national origin, or on the basis of disability or age in admission to, participation in, or receipt of the services and benefits of any of its programs and activities or in employment therein. This statement is in accordance with the provisions of Title VI of the Civil Rights Act of 1964, Section 504 of the Rehabilitation Act of 1973, the Age Discrimination Act of 1975, and Regulations of the U.S. Department of Health and Human Services issued pursuant to the Acts, Title 45 Code of Federal Regulations part 80, 84, and 91.

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